Health Affairs, 28, no. 2 (2009): 435-443 doi: 10.1377/hlthaff.28.2.435 © 2009 by Project HOPE	New Online   House Health Reform Bill   Paying for Reform   Vetting AHIP's Report   HIV/AIDS Costs   Brief: Insurance Reform   HA Blog Top 10

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Privacy

Engaging Patients For Health Information Exchange

Health information exchange (HIE) offers tremendous potential for the future, but its widespread adoption and sustainability depend upon engaging patients and earning their trust. Patients’ willingness to allow their data to be shared will drive the usefulness of HIE and therefore the sustainability of regional health information organizations (RHIOs). The Massachusetts eHealth Collaborative (MAeHC) is one of a few organizations that have developed a successful community-based collaborative model, with more than a 90 percent opt-in rate among patients to participate in widespread electronic data sharing. Lessons learned from MAeHC’s three pilot programs could be instructive for other HIE projects around the country.

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