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Neuman Web Exclusive
D A T A W A T C H : D I S A B I L I T I E S & I N S U R A N C E W E B E X C L U S I V E
19 November 2003
Uncovering The Health Challenges Facing People With Disabilities: The Role Of Health Insurance
Findings from a 2003 national
survey of people with disabilities highlight barriers
to care among the uninsured and those with gaps in coverage.
by Kristina W. Hanson, Patricia
Neuman, David Dutwin, and Judith D. Kasper
ABSTRACT:
Americans with disabilities have wide-ranging health care needs and
face serious challenges in the health care system. This 2003 survey of 1,505
nonelderly adults with disabilities finds relatively large shares of people
with disabilities reporting cost-related barriers to care. The study also reveals
marked differences in cost-related experiences both between those with and without
health insurance and across sources of coverage. These findings suggest the
need for additional research, along with policies to provide health insurance
to people with disabilities who lack coverage, to fill gaps in coverage among
those with Medicare and private insurance, and to maintain coverage for Medicaid
enrollees amid rising costs and state budget shortfalls.
People with disabilities face serious challenges because of their often substantial
health care needs, their reliance on a wide range of services and supports,
and their often low and fixed incomes.1 Despite
these challenges and the need to navigate a complex system of public and private
sources of health care coverage and assistance, little is known about the services
and supports people with disabilities need to live independently in the community,
the extent to which their needs are being met by the health care system, and
how this varies by source of insurance and other personal characteristics.
This paper examines the role of health insurance for people with disabilities,
with a particular emphasis on Medicare and Medicaid. Together, these two programs
provide coverage to more than ten million nonelderly people (under age sixty-five)
living with disabilities.2 Given the size of the
population affected, the substantial commitment in public dollars, and the challenges
inherent in living with a disability, it is especially important to understand
how well these programs are meeting people’s needs and the extent to which
gaps in coverage create barriers to needed care.
A number of existing data sets shed light on the challenges people with disabilities
face, in terms of the public programs they rely on for health insurance and
other forms of assistance, their health care needs, and financial circumstances.
However, these data are often restricted to specific subgroups of people with
disabilities, defined either by disability type or by a single source of insurance
coverage, or are focused primarily on measures other than the extent to which
various health programs are meeting the needs of this heterogeneous population.3
For instance, the Medicare Current Beneficiary Survey (MCBS) includes detailed
data on the health care needs, coverage status, and living situations of all
Medicare beneficiaries, including nonelderly beneficiaries living with disabilities.
However, because the survey by definition excludes those not enrolled in Medicare,
it does not address the question of how those with other sources of insurance
compare along these dimensions. The Disability Supplement to the National Health
Interview Survey (NHIS-D), one of the most comprehensive efforts to identify
people with disabilities and their patterns of health care use, continues to
provide important information but was conducted almost ten years ago.
In addition to survey data, administrative data—such as Social Security
data on the numbers of disabled people receiving income support through the
Supplemental Security Income (SSI) and Social Security Disability Insurance
(SSDI) programs—provide another source of information about people with
disabilities.4 However, these resources are generally
limited to data on basic demographic characteristics and disability benefits,
not health coverage, spending, and outcomes.5 Conversely,
national Medicare and state Medicaid data reflect use and health care payments
made by these programs but include no information on other payers, out-of-pocket
costs, access measures, or barriers to care.
These data sources, while valuable, leave a number of questions unanswered.
In an effort to address some of these gaps, this 2003 survey takes a comprehensive
look at the health-related characteristics of people with a broad range of disabilities
and provides information on how use, costs, and access vary by source of coverage.
This paper highlights key survey findings, including the diversity of this population,
the major health care challenges they face, how their experiences vary by insurance
type, and the extent to which specific sources of coverage are associated with
access- and cost-related problems. The paper concludes with a discussion of
the range of policy options that could be considered in an effort to address
the challenges we identify.
Study Methods
The data presented in this paper are based on a national telephone survey of
1,505 nonelderly people ages 18–64 with permanent physical disabilities,
mental disabilities, or both. The sample was drawn from a nationally representative
survey of households to identify people with disabilities. Households were contacted
through random-digit dialing and screened between 19 June 2002 and 28 January
2003, and interviews were conducted between 9 January and 11 February 2003.
International Communications Research (ICR) conducted the fieldwork. The survey
instrument was developed by team of researchers at ICR and the Henry J. Kaiser
Family Foundation, in consultation with academic disability experts and others
at the Social Security Administration.
There are multiple approaches to defining disability for research purposes.
However, because a central goal of this study was to describe the health care
experiences of nonelderly adults across a broad array of disability types and
sources of coverage, the questions were designed to capture two groups of people
ages 18–64: (1) those receiving disability payments through either SSI
or SSDI; and (2) those who consider themselves as having a mental or physical
disability but who are not receiving payments from either program. These questions
were asked again for validation purposes when the households were contacted
again for full interviews. The survey instrument included items on respondents’
disabling conditions, health care use, health insurance, access to care, cost
burdens, employment status and history, and basic demographic characteristics.
As the sample was collected, 33,357 households were contacted, 3,687 of which
were identified as including a household member with a disability. As with any
survey, when households were contacted again for complete interviews, a number
of those identified in the initial screening process were deemed invalid because
the respondent no longer met the inclusion criteria, had moved out of the residence,
had died, or some other reason. Among those not ruled out in this way, the response
rate was 67.3 percent.6 The sample excludes people
with disabilities living in institutions and non-English speakers. Proxy interviews
were conducted with 168 respondents (11 percent of the total sample) on behalf
of those whose disabilities or health status prevented them from completing
the interviews themselves.
Demographic data were used to poststratify the sampling weights to census data.7
The exhibits in this paper present weighted data so that the estimates are representative
of the national population of people ages 18–64 who are disabled according
to the criteria we used.
Respondents were assigned to one of the following insurance groups: Medicaid
only, Medicare only, Medicaid and Medicare (“dual eligibles”), Medicare
and private, private only, some other source, and uninsured.8
Given that many people have multiple sources of insurance to help fill the gaps
in their primary coverage, these categories were derived to test the impact
of different sources of coverage, both alone and in combination with other sources.
For about 25 percent of all cases, data on health coverage were missing or invalid.
Regression-based imputation was used to assign coverage to these people, using
models that included SSI/SSDI participation and selected demographic and health-related
indicators.9
Our analyses include bivariate and multivariate models. Bivariate relationship
testing across categorical variables and sources of insurance employed analysis
of covariance (ANCOVA) models, using a Bonferroni adjustment to account for
multiple tests of significance. Multivariate models contained two waves of logistic
regression designed to measure factors associated with access problems and cost-related
barriers to care.10 The first separated source
of insurance into dummy variables using those with only private coverage as
the comparison group. The second used single dichotomous variables defined by
pairs of insurance types to allow for specific comparisons other than those
provided by the dummy variable analysis. This approach facilitated additional
comparisons—for example, between people with Medicare and no supplemental
coverage and those with both Medicare and Medicaid. Whereas the first approach
included all respondents, the models used in the second approach were limited
to those in each insurance group.
This survey could be used to address additional policy-relevant issues, including
variations in health care experiences across sources of disability assistance,
such as SSI and SSDI. However, such issues are beyond the scope of this analysis,
which was designed primarily to explore the role of insurance in the lives of
people with disabilities. In addition, as stated above, source of coverage was
imputed for 25 percent of the sample because of apparent uncertainty among these
respondents concerning their coverage. Given the strong link between enrollment
in disability-benefits programs and health insurance through Medicaid and Medicare,
exploring the role of disability benefits in the outcomes of interest here would
require a different analytical approach from the one we took.
Study Findings
People with disabilities face serious socioeconomic and health-related disadvantages
compared with the nonelderly U.S. population as a whole. Relative to the general
nonelderly adult population, people with mental or physical disabilities (or
both) in this sample have lower incomes and are older, disproportionately likely
to be female, much less likely to be employed, and in much poorer health (Exhibit
1). Because of these characteristics and their baseline disabling conditions,
people with disabilities tend to have many more limitations in their basic daily
activities and are much more likely to use the health care system intensively.
Health care needs.
People with disabilities have an extremely wide range of health care needs and
personal circumstances (Exhibit
2). A large majority (80 percent) of the sample described here became disabled
in adulthood, 9 percent either were born with their disability or became disabled
before age one, and the remaining 10 percent became disabled before turning
eighteen.
The number of different
disabilities reported by this population speaks to the array of health care
services and other sources of support that people with disabilities often need.
Most of the people in the sample (61 percent) reported having a physical disability,
15 percent reported having a mental disability, and 24 percent reported having
both physical and mental disabilities.
The specific conditions and diagnoses reported include a wide range of congenital
conditions, injuries, neurological disorders, and psychiatric illnesses. Injury-related
disorders were the most commonly reported (affecting 18 percent of the sample),
including traumatic brain injury, spinal-cord injuries often resulting in paraplegia
or quadriplegia, and other injuries to the neck and back. Next most commonly
reported were psychiatric disorders such as schizophrenia, bipolar disorder,
and depression, which account for 14 percent of the main disabling conditions
in the sample. These groups alone demonstrate the diversity of the disabled
population in health care needs, reliance on equipment and other sources of
support, and ability to navigate the health care system independently.
While a majority of the sample reported being satisfied with their current quality
of life, respondents also described substantial challenges performing many basic
tasks of daily living (Exhibit
2). About half reported difficulties preparing meals, and more than a third
reported having difficulty with other basic tasks, such as getting in or out
of a bed or chair, showering and bathing, dressing, and taking medicines at
the right time. Those respondents who reported being in fair or poor health
were more likely than their healthier counterparts to have difficulties with
each of these activities. Compounding these basic functional challenges, more
than two-thirds of the sample said that they often feel depressed.
Family members and friends are an important source of support for people with
disabilities, with almost three-quarters of the sample relying on family and
friends for assistance with daily activities. By contrast, fewer than one in
ten turn to professional sources of assistance, such as home health aides and
personal assistants. Equipment also plays a critical role in the lives of many
people with disabilities, with 45 percent of those with a physical disability
relying on some form of equipment, such as motorized wheelchairs, to help them
manage their basic needs.
Not surprisingly, many people with disabilities use the health care system frequently:
90 percent reported having seen a physician in the six months prior to the survey,
and one-third reported a visit to the emergency room in the past six months.
In addition, nearly 90 percent reported using at least one prescription drug
regularly. As might be expected, these use rates are higher than they are for
the general adult population.11 People in fair
or poor health are especially likely to use services frequently: Almost two-thirds
of this group reported seeing a physician four or more times in the previous
six months, compared with slightly more than 40 percent of those who consider
themselves in better health. While those with disabilities are relatively heavy
users of health care services, they receive these services much less frequently
than is generally recommended.12
Health insurance coverage.
Previous research has documented the importance of health insurance in facilitating
access to health care.13 Thus, it is especially
critical to examine the role of coverage in the context of people with complex
service needs, such as those with disabilities. In our sample, 95 percent have
some form of health insurance. This high rate of coverage is partly attributable
to the links between enrollment in disability benefit programs such as SSI and
SSDI and eligibility for health insurance through Medicaid and Medicare, respectively.
However, even among those with disabilities, this sample includes a disproportionate
share with insurance, most likely because of the definition of disability
we used, which was designed to facilitate analysis of the role of health insurance.14
Looking at the three leading sources of health insurance in this sample, 44
percent are covered by Medicaid (including the 14 percent with both Medicaid
and Medicare), 43 percent by Medicare (including 14 percent with Medicaid known
as “dual eligibles” and another 14 percent with private supplemental
coverage), and 33 percent by some form of private coverage (Exhibit
3). Roughly two-thirds rely on a single source of insurance coverage, and
about one-third have reported multiple sources of coverage. When the sample
is sorted into mutually exclusive groups, 30 percent rely solely on Medicaid,
15 percent have Medicare as their only source of coverage, and 19 percent rely
on private health insurance alone.
The populations covered
by different sources of coverage vary along several dimensions.15
In terms of disability type, for example, Medicaid was more likely than other
sources of insurance to serve people with mental disabilities. More than half
(53 percent) of those with only Medicaid have a mental disability, either alone
or in conjunction with a physical disability. By contrast, less than a third
of those on Medicare (either alone or with private coverage) have a mental disability,
similar to the population covered by private coverage only.
Although people with disabilities are more likely than adults in the general
population to have lower incomes across the board, Medicaid is especially likely
to serve poorer beneficiaries, simply because of the program’s income
and asset eligibility criteria. In this sample, 77 percent of the Medicaid population
and 74 percent of those enrolled in both Medicaid and Medicare reported annual
incomes of $12,000 or less. Fewer than half (44 percent) with Medicare alone
fall into this income group, and even smaller shares of those with Medicare
and private coverage and private coverage alone do so. Not surprisingly, given
the connection to an employer or the ability to afford such a policy on one’s
own, 60 percent of those with private coverage alone reported incomes of $24,000
or more per year.
Relative to Medicaid, which serves many of those with the lowest incomes, the
uninsured population is composed disproportionately of the near-poor, or those
with incomes just above the federal poverty level. Those in this income range
could face the greatest challenges in access and out-of-pocket costs.
Access problems and
cost-related barriers.
Because utilization patterns are driven by multiple factors—including
health care needs, people’s care-seeking behavior, and the affordability
of care—this survey also explored the extent to which people with disabilities
face challenges in paying for care, navigating the health care system, and getting
needed services.
Although the majority of survey respondents said that they have a regular doctor,
one in four reported having had trouble finding a doctor who understands their
disability (Exhibit
4). The uninsured were also more likely than those with health insurance
to say they have no regular doctor and to report trouble finding a doctor who
understands their disability. When it comes to finding a doctor who accepts
their insurance, 17 percent of the sample reported this problem, with higher
rates reported among those covered by Medicaid.
Overall, prescription drugs
and dental care are the services or benefits most commonly named as causing
cost problems, cited as a serious problem by 32 percent and 29 percent of the
sample, respectively. In addition, 21 percent of those who use equipment to
manage their disabilities said that they have serious difficulties paying for
such equipment, and 17 percent of those with a mental disability said that the
cost of mental health services was a serious problem. The affordability of these
services has direct implications for the care people with disabilities receive.
Sizable shares of this sample reported having postponed care (37 percent) or
gone without necessary items such as equipment and eyeglasses (46 percent) because
of cost. In addition, 36 percent of the overall sample reported having skipped
medication doses, split pills, or gone without filling a prescription altogether
to save money. Previous work has shown that seniors on Medicare struggle with
paying for their prescription medicines as well, with 22 percent estimated to
skip doses or split pills.16
Those without health insurance are at a substantial disadvantage when it comes
to paying for services. More than half of the uninsured reported serious problems
paying for physician visits and prescription drugs, and almost half reported
similar problems paying hospital and dental bills. Not surprisingly, when compared
with the rest of the sample, people with no insurance whatsoever are more likely
to take stringent measures to cut costs. Two-thirds of the uninsured reported
having postponed care and gone without necessities because of cost, and almost
as many said that they split pills, skipped doses, or did not fill a prescription
to save money.
Variations in access
problems and cost-related barriers, by source of coverage.
Multivariate analyses designed to examine the relationship between health insurance
and selected access problems and cost-related barriers to care confirm the importance
of insurance for people with disabilities (Exhibit
5). For instance, those without any source of health insurance coverage
were approximately four times as likely as people with health insurance to have
postponed care because of cost. The uninsured were about three times more likely
than the insured to go without needed supplies or forgo medicine because of
cost.
Level of coverage and financial
protection vary considerably by source of insurance. Those with Medicaid as
their sole source of coverage were significantly less likely than those with
either private coverage or Medicare alone to report postponing care or skimping
on medications because of cost. In general, those relying solely on Medicare
fared less well than people with private coverage. In addition, respondents
with Medicare as their sole source of coverage were more than twelve times as
likely to have postponed care and more than seven times as likely to have forgone
taking medications because of cost than those enrolled only in Medicaid, which
underscores the important financial protections provided by Medicaid.
Among disabled Medicare beneficiaries under age sixty-five, those with some
form of supplemental coverage are at a substantial advantage in surmounting
cost-related barriers to care. Medicare beneficiaries without supplemental coverage
through either a private source or Medicaid were significantly more likely than
those having those coverage sources to report problems on each of the three
cost-related outcome measures tested here. Those relying solely on Medicare
were almost seven times more likely than those with supplemental coverage to
postpone care because of cost. They were also about five times as likely as
those with private supplemental coverage and about three times as likely as
those with both Medicare and Medicaid to go without health care necessities
because of cost.
When multivariate analyses were used to examine the relationship between source
of coverage and access problems not stemming directly from the costs of care,
the results were somewhat mixed, with insurance appearing to play less of a
role than it does where cost-related barriers to care are concerned.
Conclusions
And Policy Implications
Disabled adults living with disabilities face considerable challenges in the
health care system. Those interviewed for this survey have wide-ranging disabling
conditions and health care needs, along with high rates of functional limitations
and depression. For many, these needs are compounded by modest incomes that
often translate into financial barriers to the medical care and supports they
need.
People who are both uninsured and disabled are at a particular disadvantage.
They are more likely than others to forgo or delay getting necessary care, including
prescription drugs and preventive services that would reduce their future need
for health care. These findings underscore the importance of additional research
to identify those who fall within this group in terms of their health care needs,
income levels, and employment status, along with their eligibility for and enrollment
in programs serving people with disabilities such as SSI and SSDI. In addition,
the challenges faced by this group of people with disabilities suggest the need
for strategies to improve access to affordable coverage for the relatively small
share of adults with disabilities who are also uninsured.
A number of approaches could be pursued to achieve this goal, including relaxing
eligibility rules to permit more low-income adults with disabilities to qualify
for assistance under Medicaid. Similarly, eliminating the twenty-four-month
period during which SSDI beneficiaries must wait before becoming eligible for
Medicare would clearly help close gaps in coverage for that particular segment
of the uninsured population.17 In addition to strategies
involving public programs, policymakers could expand access to coverage through
subsidized high-risk pools or could pursue insurance reforms to overcome well-documented
barriers to coverage in the individual market, such as denials of coverage,
exclusions for underlying conditions, and high premiums.
These findings also demonstrate that all sources of insurance are not created
equal in meeting the needs of this population. Private coverage is often perceived
as the most generous source of coverage, generally serving those with higher
incomes. However, even those with private coverage often have serious problems
paying for various services. By contrast, Medicaid appears to be performing
well in shielding low-income adults with disabilities from cost-related problems
compared with people on Medicare or private insurance. This is most likely attributable
to the scope of covered benefits under Medicaid and the program’s low
cost-sharing obligations. Despite Medicaid’s relative generosity, however,
specific benefits vary considerably by state. Further research is needed to
assess the extent of these variations and their effects on disabled beneficiaries
around the country. In addition, in the face of rising costs and budget shortfalls,
states are looking for ways to slow growth in program spending, such as curtailing
benefits, increasing cost-sharing requirements, and restricting eligibility.
In sum, this survey confirms both the success of Medicaid in assisting people
with disabilities and the potential consequences of budget-driven cutbacks.18
Medicare provides a critical source of insurance for adults under age sixty-five
with disabilities who might otherwise face serious obstacles to affordable health
insurance. However, beneficiaries who rely on Medicare as their sole source
of coverage are far more likely than those with either Medicaid or private insurance
to delay care, go without needed equipment, or forgo medicines because of cost.
They are also more likely than others who have supplemental coverage to report
cost-related problems. A new Medicare drug benefit would clearly help those
who cannot afford their medications—particularly if designed to cover
the unique drug-related needs of Medicare’s nonelderly beneficiaries.19
In addition, a careful reexamination of Medicare’s benefit package and
coverage limits could help to reduce the large share of beneficiaries who report
problems paying for other services such as mental health care, dental care,
equipment, and home health services.20
The findings from this survey highlight the diverse needs of nonelderly adults
with disabilities, while also demonstrating the need for important improvements
in the health care coverage available to this population. Along with extending
coverage to particularly disadvantaged groups of people with disabilities who
lack coverage altogether, future policy debates should focus on strengthening
the coverage offered through both public and private sources of insurance, to
improve health care and the quality of life for Americans with disabilities.
The authors thank Diane Rowland, Barbara Lyons, and Risa Elias for their
assistance with the design of this study; Melissa Herrmann for her help with
the survey instrument and data analysis; Elizabeth Newell for her research assistance;
and Bob Williams and Henry Claypool for their insights and thoughtful comments.
NOTES
1. J.A. Meyer and P.J. Zeller, “Profiles of Disability:
Employment and Health Coverage” (Washington: Kaiser Commission on Medicaid
and the Uninsured, September 1999); and M.J. Perry, A. Dulio, and K.W. Hanson,
“The Role of Health Coverage for People with Disabilities: Findings from
Twelve Focus Groups with People with Disabilities” (Menlo Park, Calif.:
Lake, Snell, Perry, and Associates and Henry J. Kaiser Foundation, September
2003).
2. J.D. Kasper, Unpublished analysis of 1999 Medicaid Statistical
Information System (MSIS) and 1999 Medicare Current Beneficiary Survey (MCBS)
for the Kaiser Commission on Medicaid and the Uninsured, November 2002.
3. For examples of analyses specific to individual sources of
coverage, see T.A. Coughlin, S.K. Long, and S. Kendall, “Health Care Access,
Use, and Satisfaction among Disabled Medicaid Beneficiaries,” Health
Care Financing Review (Winter 2002): 115–136; and G.F. Riley, J.D.
Lubitz, and N. Zhang, “Patterns of Health Care and Disability for Medicare
Beneficiaries under Sixty-five,” Inquiry (Spring 2003): 71–83.
4. SSI is a cash-assistance program for low-income people who
are totally and permanently disabled, as determined by the Social Security Administration.
Those who are eligible for SSI automatically qualify for Medicaid, although
some states have the authority to impose more restrictive eligibility criteria.
SSDI is a federal program for people with disabilities with a work history,
without regard to income. People qualify for SSDI if they have a permanent disability
that prevents them from engaging in substantial gainful activity and if they
have contributed to Social Security for a specified period of time. The SSDI
program is financed by Social Security taxes, and disability payment amounts
are based on a person’s earnings record.
5. L.I. Iezzoni, “Using Administrative Data to Study Persons
with Disabilities,” Milbank Quarterly 80, no. 2 (2002): 347–379.
6. A number of methods were used to maximize the overall response
rate, including eight or more call attempts per telephone number, locating techniques
for invalid phone numbers, and refusal conversion attempts. The study used the
American Association of Public Opinion Research’s RR3 response rate formula,
which is defined as completed interviews (N = 1,505) divided by completed interviews,
refusals, noncontacts, and an estimated proportion of unknown contacts.
7. Because a central goal of this research was to examine the
experiences of people covered by Medicare and Medicaid as well as by other sources,
the definition of disability used to create the sample differs from
those used in other surveys, such as the Current Population Survey or the National
Health Interview Survey.
8. There are thirty-eight respondents in the “Medicaid-only”
group with both Medicaid and private coverage and twenty-three in the Medicaid
and Medicare group who have private coverage as well.
9. For a more complete discussion of the methods involved in
the imputation process, contact the authors. Send e-mail to Tricia Neuman, tneuman{at}kff.org.
10. Additional independent variables included in the regression
models, but not presented here, are disability type (mental, physical, mental
and physical) and age of onset, health status and functional status, sources
of support, health care use, and demographic information.
11. Authors’ analysis of MEPSnet Household Component,
2000, August 2003,
www.meps.ahrq.gov/mepsnet/HC/MEPSnetHC.asp
(7 November 2003).
12. For example, see “Screening for Breast Cancer: Recommendations
and Rationale,” February 2002,
www.ahrq.gov/clinic/3rduspstf/breastcancer/brcanrr.htm
(17 October 2003).
.13. J. Hadley, “Sicker and Poorer—The Consequences
of Being Uninsured: A Review of the Research on the Relationship between Health
Insurance, Medical Care Use, Health, Work, and Income,” Medical Care
Research and Review 60, Supp. (June 2003): 3S–75S.
14. The National Health Interview Survey on Disability (NHIS-D)
estimates that 16 percent of the nonelderly adult population was uninsured in
1994–1995.
15. S.M. Foote and C. Hogan, “Disability Profile and
Health Care Costs of Medicare Beneficiaries under Age Sixty-five,” Health
Affairs (Nov/Dec 2001): 242–253; and Meyer and Zeller, Profiles
of Disability.
16. D.G. Safran et al., “Prescription Drug Coverage and
Seniors: How Well Are States Closing the Gap?” 31 July 2002, www.healthaffairs.org/WebExclusives/Safran_Web_Excl_073102.htm
(27 October 2003).
17. The number of respondents in the waiting period in the
survey sample was not large enough to analyze independently. However, a report
recently released by the Commonwealth Fund estimates that 1.2 million nonelderly
people with disabilities are enrolled in SSDI, but in the two-year waiting period
for Medicare eligibility, as many as 400,000 of them could be uninsured. Commonwealth
Fund, Elimination of Medicare’s Waiting Period for Seriously Disabled
Adults: Impact on Coverage and Costs, July 2003, www.cmwf.org/programs/medfutur/dale_waitingperiod_ib_660.pdf
(17 October 2003).
18. V. Smith et al., “States Respond to Fiscal Pressure:
State Medicaid Spending Growth and Cost Containment” (Washington: Kaiser
Commission on Medicaid and the Uninsured, September 2003).
19. B. Briesacher and B. Stuart, “Medicare’s Disabled
Beneficiaries: The Forgotten Population in the Debate over Drug Benefits”
(Washington: Henry J. Kaiser Family Foundation, September 2002).
20. J. Eichner and D. Blumenthal, eds., Medicare in the
Twenty-first Century: Building a Better Chronic Care System (Washington:
National Academy of Social Insurance, January 2003).
Kristina Hanson, formerly
with the Henry J. Kaiser Family Foundation, is a senior research manager at
Harris Interactive in New York City. Patricia Neuman,tneuman{at}kff.org, is a vice-president and director of the Medicare Policy
Project at the Kaiser Family Foundation. David Dutwin is a senior research director
at International Communications Research in Media, Pennsylvania. Judith Kasper
is a professor in the Department of Health Policy and Management, and a senior
research associate in the Health Services Research and Development Center, at
the Johns Hopkins Bloomberg School of Public Health in Baltimore, Maryland.
DOI: 10.1377/hlthaff.W3.552
©2003 Project HOPEThe People-to-People Health Foundation, Inc.
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